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TSF 5K for Rare Neuroimmune Disorders

Date
September 13, 2026
Distance
5K Run

From the Organizer

After suddenly losing vision and feeling in her body, Sumaira was diagnosed with neuromyelitis optica (NMO), a rare autoimmune disease that affects the central nervous system resulting in vision loss and paralysis. Two months after her diagnosis, she started The Sumaira Foundation (TSF), a now global nonprofit organization dedicated to raising awareness of rare neuroimmune disorders, building communities of support for patients and their caregivers, funding research and advocating on behalf of patients. TSF is proud to be patient-led, patient-powered, science-driven and therapy-agnostic. The organization is proud to call 102 patients, caregivers and clinicians TSF Ambassadors representing 35 countries. 

A Personal Message from Teresa Clark (TSF Ambassador):

"As many of you may know, almost three years ago, in May 2022, I was diagnosed with a rare autoimmune disease called NMO - Neuromyelitis Optica. 

This 5k has been something I've wanted to do for years now, so I'm excited to finally begin this annual race to raise awareness. 

Early detection of NMO improves quality of life!" Read more on Terry's Story Here: https://www.sumairafoundation.org/terrys-nmo-story-the-perfect-storm/

Since 2018, TSF has funded $1m in rare neuroimmune disorder research, fellowship and journal publications as a result of grassroot fundraising. The aim of the 5K is to raise enough funds to support 2 additional research projects in 2025 through the Foundation’s SPARK and Unicorn grants. Explore TSF's research portfolio: https://www.sumairafoundation.org/tsf-funded-research/

Distances & Pricing

5K Run9 AMRegister →

Race Location

About This Sport

From Endurance Grid's Founder

Endurance Grid is here to help you understand the sport, decide if it's the right fit, and learn how to prepare. For course distances, logistics, and race-day specifics, always defer to the race organizer's event page.

With running, there's a distance for every fitness level, a community at every start line, and nothing beats the feeling of crossing a finish line you trained for.

Running is an endurance sport that rewards consistency, and showing up every week compounds in ways that will surprise you.

Running

From 5K to marathon, running races are the most accessible entry point into endurance sport. There's a distance for every fitness level and a community at every start line.

Frequently Asked Questions (FAQs)

What is the TSF 5K for Rare Neuroimmune Disorders?
TSF 5K for Rare Neuroimmune Disorders is a running event held in Weston, MA. Learn more about the different endurance sports here.
When and where is the TSF 5K for Rare Neuroimmune Disorders?
Sunday, September 13, 2026 in Weston, MA at 11 Town House Rd, Weston, MA. Check the official event page for exact start times and wave schedules.
How do I register for the TSF 5K for Rare Neuroimmune Disorders?
Registration is handled through their official registration page. Confirm pricing, distances available, and sign up there.

TSF 5K for Rare Neuroimmune Disorders

Sep 13, 2026

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