
From the Organizer
The National MPS Society will host a timed 5K run & walk event, beginning at 9 AM on Saturday, September 13. This event is to raise money and awareness to help change the lives of those living with a rare disease. 10% of Americans suffer from a rare disease and less than 5% have an FDA-approved treatment. 3 out of 10 children with a rare condition do not live to see their 5th birthday, and we work to change this. Proceeds benefit the National MPS Society.
Buses will begin transporting Conference attendees at 7:00am and will continue on rotation until 12:45pm
7:30 AM: Onsite registration and packet pick-up
9:00 AM: 5K Run/Walk
10:00 AM: Awards
10:30 AM: Family Lunch
Lunch is included in registration costs. Come out and enjoy a fun day to help raise awareness and funds for our MPS and ML families!
At the top, hover over "Donate"
Select "become a fundraiser"
Create your team page - Choose your photo, team name, bio and fundraising goal!
Share the link for people to donate directly to your fundraiser!
You can do this before or after you register
If you're interested in sponsoring the event, please contact Bethany Greene at bethany@mpssociety.org
All proceeds go to furthering the mission of the National MPS Society. FEIN: 11-2734849
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